Research in progress

The Master’s students of the Department of Media and Film, University of Sussex, as part of a workshop I led on November 1st, 2013 (on Digital methods: web mapping of controversies), researched the issue of personal data sharing.

Key sites of digital tools we’re using today:

https://www.digitalmethods.net/Dmi/ToolDatabase

http://mappingcontroversies.net/

http://voyant-tools.org/

https://tools.digitalmethods.net/beta/googleImages/

https://tools.digitalmethods.net/beta/opencalais/

https://wiki.digitalmethods.net/Dmi/PapersPublications

Twitter #webmappingcontroversy, @SussexUniMFM

This is what MFM graduate students came up with (updated as we work…):

– Three groups of students are querying ‘medical record privacy and data’

Group 1: Are making a list of the top 5 state actors talking about the issue

Group 2: Are making a list of the top 5 user and citizen groups (including news media)

Group 3: Are making a list of the top 5 industry actors (most difficult one so far!)

Findings- Source sets

Group 1:

http://www.ico.org.uk/for_the_public/topic_specific_guides/health

http://www.nhs.uk/NHSEngland/thenhs/records/healthrecords/Pages/overview.aspx

http://www.hfea.gov.uk/3479.html

http://digitalchallenge.dh.gov.uk/2013/04/26/caldicott/

http://www.scotland.gov.uk/Publications/2013/10/1304/2

Group 2:

http://www.ico.org.uk/for_the_public/topic_specific_guides/health

http://www.opendemocracy.net/ournhs/phil-booth/your-medical-data-on-sale-for-pound

http://www.bmj.com/content/347/bmj.f5516

http://protectournhs.wordpress.com/2013/10/02/secret-plan-to-sell-our-confidential-medical-records-to-private-companies-for-as-little-as-1-has-been-drawn-up-by-officials/

http://greenparty.org.uk/news/2013/10/07/greens-slam-privacy-breach-from-data-extraction/

http://www.businessweek.com/articles/2013-08-08/your-medical-records-are-for-sale

Group 3:

http://www.outsiderclub.com/medical-record-privacy-violations

http://investor.shareholder.com/wbmd/

http://www.imshealth.com/portal/site/imshealth/menuitem.a90cc6f1ddde5d4d170417041ad8c22a/?vgnextoid=5726e590cb4dc310VgnVCM100000a48d2ca2RCRD&vgnextfmt=default

http://www.optuminsight.com/about/

http://www.genetichealth.com/Resources_Collecting_Medical_Records.shtml

Using the Voyant tool for Issue Discovery

Group 1

http://voyant-tools.org/tool/CorpusSummary/?corpus=1383320885274.2607&stopList=stop.en.taporware.txt

Group 3

http://voyant-tools.org/tool/CorpusGrid/?corpus=1383315459172.1504

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